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Links - Rare Disorder Resources

Network Members

Fibrous Dysplasia Foundation - http://fibrousdysplasia.org
 
International FOP Association - http://www.ifopa.org
 
Lymphangiomatosis & Gorham's Disease Alliance (LGD Alliance) - http://lgdalliance.org/
 
Melorheostosis Association - http://www.melorheostosis.org
 
The MHE Research Foundation - www.MHEResearchFoundation.org
 
Osteogenesis Imperfecta Foundation - http://www.oif.org
 
The Paget Foundation for Paget's Disease of Bone and Related Disorders - http://www.paget.org
 
   
Other
 
Office of Rare Diseases, National Institute of Health (NIH)
 
European Organization for Rare Bone Disease
 
National Organization for Rare Disorders (N.O.R.D)
 
New Zealand Office of Rare Bone Disease
 
National Center for Rare Disease in Italy
 
Swedish National Center for Rare Diseases
 
National Center for Rare Disease in Canada

 
 

Overview

About Rare Bone Diseases

For Healthcare Professionals and Researchers

In the News

Research

 
 

Calendar

Soft Bones Hypophosphatasia Research Grant - Application Deadline August 15, 2012

2012 Rare Bone Disease Research Summit

Rare Disease Day

1st Advances in Rare Bone Diseases Scientific Conference

1st Advances Conference Report

Links

Inaugural Meeting Report





 


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